Department of Medical Social Sciences

Previous Presentations

May 1-3, 2013
NIH Toolbox Training Workshop.   REGISTRATION CLOSED
3 day training workshop will be held on Northwestern University-Chicago campus. More information and online registration>>

May 4, 2013
Pediatric Academic Society, Washington, DC
, Invited speaker and Topic Symposium co-chair, “The Power of Health Information Technology in the Intensive Care Unit”. Craig Garfield, MD

May 4 - 8, 2013
American Urological Association Annual Meeting, San Diego, CA. Do Pre-Treatment Differences Exist Between Men Who Choose Active Surveillance or Radical Prostatectomy in Self-Reported QOL, Anxiety or Urological Symptoms? David Victorson, PhD

May 6-8, 2013
Scientific Meeting of the American Spinal Injury Association, Chicago, IL.  Development and evaluation of environmental factor items for persons with spinal cord injury. Heinemann, A. W., Lai, J. S., Carlozzi, N., Hammel, J., Garcia, S. F., Gray, D. B., Hahn, E. A.., Magasi, S., Tulsky, D., Kozlowski, A., & Jerousek, S.

April 17-20, 2013
Society of American Gastrointestinal and Endoscopic Surgeons (SAGES), Baltimore, MD.  Zapf, M., Denham, W., Barrera, E.,  Butt, Z., Linn, J., Carbray, J., Du, H., & Ujiki, M.  Patient-centered outcomes following laparoscopic cholecystectomy.

April 11-14, 2013
National Academy of Pain Medicine, Ft. Lauderdale, FL. Meeting the Challenge: Demonstrating Coordinated Quality Pain Care to our Service Members and Veterans.  Invited presentation. Cook, K.F.

April 4, 2013
Northwestern University Lewis Landsberg Research Day.  Breast cancer patients’ risk perceptions and treatment values following surgical consult. Karen Kaiser, PhD

April 2 - 4, 2013
National Rx Drug Abuse Summit, Orlando, FL. Transformation of Pain Management. Invited presentation.  Cook KF,  Galloway K.

March 20-23, 2013
Society for Behavioral Medicine, San Francisco, CA.

  • Clinical outcomes and quality of life in recipients of livers donated after cardiac death. Parikh, N. D., Skaro, A. I., Ladner, D., Daud, A., Abecassis, M. M., &  Butt, Z. 
  • Prospective longitudinal evaluation of a symptom cluster in breast cancer. Sanford, S. D., Beaumont, J., Butt, Z.  Sweet, J. J., Cella, D., & Wagner, L. I.
  • Evaluation of treatment and disease-related symptoms in advanced head and neck cancer: Validation of a new disease-specific quality of life measure. Timothy Pearman, PhD 
  • Satisfaction with cancer care communication in a study of a multimedia patient assessment and education system.Garcia, S. F., Peipert, J.D.,  & Hahn, E. A.

March 14-16, 2013
Central Surgical Association
. Amelia Island, FL.  Single-incision results in similar pain and quality of life scores with better cosmesis compared to multi-incision laparoscopic cholecystectomy: A blinded prospective randomized trial of 100 patients. Zapf, M., Salabat, R., Leung, D., Yetasook, A., Denham, W., Barrera, E., Butt, Z., Carbray, J., Du, H., & Ujiki, M.

February 22, 2013
GI cancer conference, Northwestern University, Distress screening, fatigue and chemobrain.  Timothy Pearman, PhD 

February 14-16, 2013

American Psychosocial Oncology Society, Huntington Beach, CA.

  • Cancer Care Communication (C3): A low literacy-friendly, multimedia information technology system to enhance patient-centered care. Garcia, S. F. Peipert, J.D.,  Miller, E., Muench, C., & Hahn, E.
  • Integrating a web based assessment into routine cancer care: clinical application of the patient-reported outcomes measurement information system (PROMIS) computer adaptive test. Wagner, L.W., King, K., Kozlowski, C., Pearman, T., Abraham, L., Patel, S., Bass, M., Varela, M., Rothrock, N., Schink, J., Gershon, R. & Cella, D.

February 11-16, 2013
Society for Maternal-Fetal Medicine. San Francisco, CA. An optimized measure of maternal stress is associated with biologic markers of stress and pregnancy outcome. Borders, A., Lai, J.-S., Kim, K.-Y., Butt, Z., Thorp, J., Dole, N., Holl, J., & Grobman, W.

February 4, 2013
Hematology/Oncology “Grand Rounds” University of Chicago, Department of Medicine. Building and maintaining supportive oncology programs. Timothy Pearman, PhD 

February 1, 2013 
MESA/CARDIA Seminar. 11AM. Suite 1400, 680 N. Lake Shore Dr. Chicago, IL
Integrating Patient Reported Outcomes Measures in Epidemiological Studies: A Review of Recent NIH Efforts. David Victorson, PhD

January 28, 2013
Assessment Center workshop “Advances in Patient-Reported Outcome Measurement”. Burbank, CA.Richard Gershon PhD, Nan Rothrock, PhD.   More details and registration here>>

December 18, 2012
AHRQ  National Web Conference on Practical Models to Improve Patient-Clinician Communication Using Health IT, 2:30-4:00 p.m., EST Beth Hahn, MA  

December 3-5, 2012
Michael Bass, MSS Lead Software Developer presented "Computer Adaptive Testing (CAT) Approach to Patient Reported Outcomes" at mHealth Technology Summit, December 3-5, Washington DC.  View video of presentation>>

November 2012
David Victorson, PhD and colleague Mark Huffman, MD/MPD, Preventive Medicine & Cardiology, met with India's Ministry of Health in Kerala, India discussing global cardiovascular health outcomes, and ways India may be a translational model for addressing modifiable risk factors.

November 30, 2012
Oncology Nursing Society Annual Conference, Chicago, IL. Cancer related quality of life: distress screening, fatigue and cognitive changes.  Timothy Pearman, PhD

November 30, 2012
ASCO Quality Care Symposium. San Diego, CA  Key concerns and symptoms of patients undergoing second and third line treatment for non-small cell lung cancer: Findings from a patient interview study. Magasi S, Kaiser K, Mallick R, Cella D. 

November 17, 2012
NIH Initiatives to Improve Measurement: PROMIS and NIH Toolbox  American Speech-Language-Hearing Academy, Atlanta, Georgia. Karon F. Cook, PhD

November 14-18, 2012
Gerontological Society of America. Annual Scientific Meeting,San Diego, CA. Pre conference workshop. Introduction to Patient-Reported Outcome Item Banks: Issues in Minority Aging Research. Richard Gershon, PhD, Nan Rothrock, PhD.

November 9th and 13th, 2012
Stress in Your Workday: What, Why and How to Beat It.  NURAP event.  Evanston and Chicago.  Vered Hankin Kaufman, PhD

November 7-9, 2012  Critical Mass Young Adult Cancer Alliance Meeting,  Atlanta, GA,. Collaboration, Community and Connection.  David Victorson, PhD

November 9, 2012   Assessment Center Workshop, Chicago.  Register online>>

October 26-27, 2012
Chicago Supportive Oncology Conference, Chicago, IL., Cancer and treatment-related cognitive impairments: Results from the TAILORx trial. Lynn Wagner, PhD.   Video discussion on Journal of Supportive Oncology website

October 26, 2012 
American Psychosomatic Society Meeting on Biobehavioral Oncology,  Toward Precision Cancer Care: Biobehavioral Contributions to the Exposome. Frank J. Penedo, PhD

October 24-27, 2012
International Society for Quality of Life Research (ISOQOL) Budapest, Hungary.

-ISOQOL recommends minimum standards for patient-reported outcomes measures for use in patient-centered outcomes research. Abstract. Zeeshan Butt, PhD et al. 
-Measure-ABLE: Ensuring that health outcome and performance measures are accessible and valid for people with disabilities and chronic medical conditions.  Susan Magasi, PhD, Mark Harniss
-Development and evaluation of environmental factor candidate items for persons with stroke, traumatic brain injury and spinal cord injury.  Heinemann, A. W., Lai, J. S., Carlozzi, N., Hammel, J., Garcia, S. F., Gray, D. B., Hahn, E. A., et al.
-A new measurement system to evaluate environmental barriers and facilitators to community participation.  Heinemann, A. W., Lai, J. S., Carlozzi, N., Hammel, J., Garcia, S. F., Gray, D. B., Hahn, E. A., et al.

October 23, 2012 
Institute for Ageing and Health, Newcastle University, UK.  The NIH Toolbox to Assess Healthy Ageing>>   Richard Gershon, PhD

October 20, 2012
Aplastic Anemia and Myelodysplasia International Foundation Annual Meeting, Chicago, IL. Managing fatigue and insomnia in bone marrow failure disease.  Tim Pearman, PhD

October 2012
Northwestern Brain Tumor Institute Annual patient and family meeting.  Chicago, IL. Fatigue, pain and distress: managing cancer-related symptoms.  Tim Pearman, PhD

October 23, 2012
Stress & Health Symposium: Measurement & Translational Applications
Special interdisciplinary symposium designed to promote cross-talk throughout the Northwestern University community, among diverse scholars studying stress and its impact on lifespan health. Details and registration>>

October 18, 2012
Center for Healthcare Studies and Department of Medical Social Sciences Seminar Series.  HIV Risk Among Young Male Couples: A Mixed-Methods Analysis.  George J. Greene, PhD

October , 2012
Aplastic Anemia and Myelodysplasia International Foundation Annual Meeting, Chicago, IL. Managing fatigue and insomnia in bone marrow failure disease.  Timothy Pearman, PhD

October 7, 2012
Society for Research in Psychopathology, University of Michigan, Ann Arbor, MI. Openness, Intellect, and Imagination: An Exploratory Analysis of Structure and Vulnerability to Psychopathology. Benjamin Schalet, PhD, et al.

September 22, 2012 
Northwestern University Interdisciplinary Innovations in Developmental Education And Science (NUIIDEAS), Feinberg School of Medicine, Chicago, IL,. “Fathering: History, Hormones, Health, Home,” Craig Garfield, MD

September 12-14, 2012
"Administering the NIH Toolbox". Training workshop immediately following the  “Unveiling the NIH Toolbox” conference.  Workshop will prepare attendees to use the NIH Toolbox by teaching them how to select and download NIH Toolbox measures; and providing formal training in administering the instruments. More information and online registration>>

September 10-11, 2012
Unveiling the NIH Toolbox.  Conference.  Bethesda, MD.  Richard Gershon, PhD., Cindy Nowinski, MD PhD

September 6-8, 2012
American Society for Surgery of the Hand. Chicago, IL. Upper limb amputees’ perceptions of the acceptability of outcomes of hand transplantation. S. E. Jensen, G. Dumanian, S. Magasi, Z. Butt, M. Abecassis & D. Cella.

September 2012
Pearman, T.P. (September 2012). Lynn Sage Breast Cancer Town Hall Meeting-a panel discussion on the state of the science in breast cancer treatment.  Panelist, Chicago, IL.

August 29 - September 1, 2012International Congress of Behavioral Medicine, Budapest, Hungary. From Basic Science to Clinical Investigation and Public Health, Frank J. Penedo, PhD

August 17, 2012
Joint Biostatistics/Outcomes/Bioinformatics Seminar Department of Preventive Medicine.  Using behavior genetic methodology to understand gene-environment interplay.  T. Caitlin O’Brien, PhD

August 2-5, 2012
American Psychological Association, Orlando, FL.. Symposium Training models and professional identities in health psychology. Discussant and facilitator. In D. Dean (Chair).  Z. Butt

August, 2012
Northwestern Memorial Hospital Annual Kidney/Pancreas Transplant Conference. Chicago, IL Transplantation quality of life: Patient-reported outcomes in organ transplantation and donation. I.nvited paper. Butt, Z. 

July, 2012
NUCATS Institute Clinical and Translational Research Summer Seminar Series, Chicago, IL . Launching a career in patient-centered outcomes research.  Invited paper.  Butt, Z

July 29, 2012
True North Treks and the Robert H. Lurie Comprehensive Cancer Center of Northwestern University present the 1st Annual Chicago SUP YACS Classic  (Stand Up Paddleboard Race, Ride and Glide for Young Adult Cancer Survivors)  Montrose Beach, Chicago.  9AM-12PM. More Information and registration >>

June 27-29, 2012
Academy of Behavioral Medicine Research, Annual Scientific Meeting, Asheville, NC.  Evaluating the Relationship among Family Environment, Familism and the Metabolic Sydrome among Hispanics in the US. Frank Penedo, PhD

June 14-17, 2012
Plastic Surgery Research Council
. Annual Meeting. Ann Arbor, MI. Multimodal assessment of ethnic differences in cosmetic outcome following breast conserving therapy: Results from a pilot study.  E. Hirsch, Z. Butt , S. Khan,  C. U. Chukwu, R.D. Galiano

June 14, 2012
Diversity and Clinical Trials Symposium, Chicago. Co-sponsored by National Hispanic Life Sciences Society and the National Biotechnology & Pharmaceutical Association's Center for Healthcare Innovation. Clinical Trials in Hispanic Cancer Survivors. Frank J. Penedo, PhD.

June 6, 2012
American Physical Therapy Association ,Tampa, FL Unveiling the NIH Toolbox: Measurement for clinical practice and research. Pre-conference.  RM Rine, PhD, Richard Gershon, PhD, Cindy Nowinski,MD, PhD,Susan Magasi, PhD, Jerry Slotkin, PhD.

June 4, 2012
American Society of Clinical Oncology (ASCO). Chicago, IL. Characterizing fatigue associated with sunitinib (SU) in patients (pts) with metastatic renal cell carcinoma (mRCC). David Cella, PhD

May 31, 2012
Assessment Center Workshop, Chicago, Illinois, Richard Gershon, PhD, Nan Rothrock, PhD

May 22, 2012
Midwest Biopharmaceutical Statistics Workshop. Patient-Reported Outcome Measure Development. Ball State University Alumni Center, Muncie, Indiana   Workshop presentation by Michael Kallen, Ph.D. and Nan Rothrock, PhD

May 22-24, 2012
National Institutes of Health, Bethesda MD. Fathers & Fathering in Contemporary Contexts ConferenceFather Involvement and Family, Child and Father Wellbeing. Craig Garfield, MD

May 21, 2012
International Conference on Pervasive Computing Technologies for Healthcare, San Diego, Self-Efficacy Theory as a Framework For Interventions That Support Parents of NICU Infants. Lee, YS, Garfield, CF., Kim, H.  

May 19-23, 2012
American Urological Association, Atlanta, GA.
Mindfulness Based Stress Reduction Decreases Fear of Progression over Time for Men with Prostate Cancer on Active Surveillance: Results from a Randomized Clinical Trial, David Victorson, PhD.
Fertility preservation preferences and viewpoints among adult male survivors of childhood cancer and their parents. David Victorson, PhD, T. Pearman, PhD et al.

May 19-22, 2012
Digestive Disease Week. San Diego, CA. Development and validation of a symptom index for advanced hepatobiliary cancers: The NCCN-FACT Hepatobiliary Symptom Index. Butt, Z., Parikh, N.D., Beaumont, J. L., Rosenbloom, S. K., & Cella, D.

May 15-18, 2012
International Research Congress on Integrative Medicine and Health, Portland, OR. Advancing Outcomes Measurement and Data Collection in Integrative Medicine Clinical Research Using NIH PROMIS and Assessment Center Applications. David Victorson, PhD.

May 18, 2012
Biostatistics / Outcomes / Bioinformatics Seminar, Michelle Birkett, PhD, 9:30, 750 N Lake Shore Dr. (Rubloff); Rm. 11-300 Social Network Analysis: Applications to a Longitudinal Study of Young Men who have Sex with Men.

May 17-19, 2012
Moffitt Cancer Center Conference. Clearwater Beach, FL. Implementing a Multimedia Talking Touchscreen in Clinical Practice, Elizabeth Hahn

May 14, 2012
Northwestern University Institute for Policy Research/Cells to Society Colloquium, 617 Library Place, Evanston Campus, 12:00PM.  Moving Along the Translational Spectrum to Address Health Disparities in LGBT Youth, Brian Mustanski, PhD, Associate Professor of Medical Social Sciences, IPR Associate, and Director, IMPACT LGBT Health and Development Program, Northwestern University

May 5-10, 2012   
ACM CHI Conference on Human Factors in Computing Systems, NICU-2-HOME: Supporting the transition to home from the NICU, Bridging Clinical and Non-clinical health practices Workshop,. Lee, YS, Garfield, CF., Kim, H.
ACM CHI Conference on Human Factors in Computing Systems, NICU-2-HOME:  Theory-driven implications for improving Self-Efficacy and Mental Well-being of Parents of VLBW Infants, Interaction Design and Emotional Wellbeing Workshop Lee, YS, Garfield, CF., Kim, H.,

May 1,  2012
Pediatric Academic Society meeting, Boston, MA, “Am I able to be a good parent?” Mothers’ and Fathers’ Concerns of VLBW NICU Graduates Transitioning Home. Garfield, CF., Lee, YS., Bolcki, K., Kim, HN.

April 2012
Harvard Orthopedic Trauma Service, Boston, MA Patient-Reported Outcomes: Advances in Measurement and Data Collection Software.  Invited Presentation. Nan Rothrock, PhD

April 19, 2012
Institute for Healthcare Studies and Medical Social Sciences Seminar Series. New Directions in Upper Limb Transplantation Research. Sally E. Jensen, PhD. 12PM, more details

April 12, 2012
NIH Toolbox for the Assessment of Neurological and Behavioral Function: Life span measures of Cognition, Emotion, Sensory and Motor Function. Cognitive Neurology and Alzheimer’s Disease Center,  Richard Gershon, Ph.D. and Sandra Weintraub, PhD, Department of Psychiatry.

April 11-14, 2012
Society of Behavioral Medicine Annual Meeting, New Orleans, LA.

  • Coping moderates the relationship between perceived stress and patient-reported surgical outcomes. Poster presentation. Sally Jensen, PhD, et al.
  • Forum on measurement issues in spirituality and health research. Invited panel participant. John Salsman, PhD

April 5, 2012
Eighth Annual Lewis Landsberg Research Day, Feinberg School of Medicine, Poster sessions 2PM-4:30PM.  Northwestern Memorial Hospital Feinberg Pavilion, Third Floor Conference Center. 

Posters submitted by Medical Social Sciences researchers

It’s Conceivable: Correlates of Pregnancy Among Same-Sex Attracted Female-Born Adolescents.  Antonia Clifford, Katie Andrews, Lou Bigelow, BA; Laura Kuper, Brian Mustanski.

Prevalences of PTSD and MDD in Low-Income African-American Adolescents.  Alan Ashbeck, Gayle Byck, Brian Mustanski

Links Between Internalizing Symptoms and Emotion Processing in Preschool-Age Children. Ellen M. Kessel, Yara Mekawi, Elvira Zobel, Jacqueline Kestler, Joel Voss, Lauren Wakschlag & Margaret Briggs-Gowan

Black Women’s Awareness of Breast Cancer Disparity and Perceptions of the Causes of Disparity. Karen Kaiser, K.A. Cameron,
G. Curry, M. Stolley

Pilot study to develop culturally sensitive recruitment materials for a study of infant brain growth in a low-income population.  Kristina L Nelson, Elizabeth Sweet, Rebekah Abel, Ann EB Borders, Lauren Wakschlag.

Creation of  Macro-Network of Young Men Who Have Sex with Men. Michelle Birkett, PhD

Multimodal assessment of ethnic differences in cosmetic outcome following oncologic breast conserving therapy: Results from a pilot study. Zeeshan Butt, PhD

April 1-3, 2012
Sex:Tech Conference on youth, technology, and sexual health
, San Francisco, CA.  Diverse, young same-sex couples illustrate vibrant and healthy relationships: A research informed, video-based education module. Brian Mustanksi, PhD

March, 2012
American Cancer Society - Illinois Division, Chicago, IL. DetermiNation Annual Committee Training, Putting a face on cancer research. John Salsman, PhD

Northwestern University Feinberg School of Medicine, Clinical Psychology Internship Research Seminar, Chicago, IL  Getting published: Write, revise, repeatJohn Salsman, PhD 

March 15, 2012
Electronic Data Methods Forum

Symposium on Patient Reported Outcomes, Washington, DC,David Cella, PhD

March 14, 2012
Brian Mustanski, PhD is participating as a panelist on Mental Health Forum on Suicide Prevention:  a community conversation hosted by Congressman Mike Quigley & Congressman Danny K. Davis 10:00am – 11:30am, Adler School of Professional Psychology, Community Hall, 17 North Dearborn Street – Chicago, IL  More>>

March 8-10, 2012
Society for Research on Adolescence, Vancouver, BC.

  • Longitudinal Trajectories of Syndemic Development Among Diverse Young Men Who Have Sex With Men. Mustanski, B., Birkett, M.,& Garofalo, R.
  • Ecological Predictors of Clustered Risk Behavior Trajectories among Low-Income African American Adolescents. Sterrett, E. M., Mustanski, B., Dymnicki, A., Henry, D., Byck, G., & Bolland, J.
  • Beyond the ivory tower: Considering the public relevance of research on adolescence. Russell, S. T., Harrison, K., Wilcox, B., Mustanski, B., & Yohalem, N.

February 23-25, 2012
American Psychosocial Oncology Society (APOS), Miami, Florida.

  • An Exploration of the Attitudes, Preferences and Concerns about Fertility Preservation among Adult Male Survivors of Childhood Cancer
  • Increasing AQCESS (Advancement of Quality Care, Education and Symptom Supervision) through Self-Management Support in Prostate Cancer with a Novel Health Informatics Application: Results from Patient Pre-Testing, David Victorson, PhD
  • Building Supportive Care Programs in Oncology (workshop). Timothy Pearman, PhD

February 24, 2012
American Academy of Pain Medicine
, Palm Springs, CA. Pain Outcomes across Multiple Domains: What Should Be Measured and the National Institutes of Health (NIH) PROMIS Initiative. Symposia Presentation. Karon Cook, PhD

February 21, 2012
Medical Social Sciences hosted Lila Teixeira de Araújo Janahú, MSc. Health and Endemics of Amazonia - Federal University of Pará, Brazil for a presentation on the use of the Functional Assessment of HIV (FAHI) with Brazilian patients “Functional Assessment and Quality of Life in Human T cell Lymphothropic Virus Carriers in the city of Belem, Pará, Brazil”

February 20, 2012
Institute for Policy Research

IPR- C2S Colloquium. Triangulating Theory, Measurement Science, Neuroscience, Lauren Wakschlag, PhD 12PM, Annenberg Hall, Room: 303 2120 Campus Drive, Evanston, IL 60208 

February 15, 2012
International Neuropsychological Society, Montreal, Canada, Computerized Assessment of Cognitive Function: Accessibility and Accommodations for People with Disabilities. Susan Magasi, PhD, Phoebe Block, Mark Harniss, PhD, Mansha Mirza, PhD, Meighan Rasley.

February 17, 2012
Northwestern University Center for Civic Engagement 3rd Annual Community Research Workshop (CRWIII), 9am-4pm, Evanston campus,Norris Wildcat Room 9AM – 4PM, interdisciplinary workshop presentation by David Victorson, PhD

February 17, 2012
Joint Biostatistics/Outcomes/Bioinformatics Seminar
Development and Validation of the Pediatric Perceived Cognition Item Bank (pedsPCF) and its Application to Pediatric Oncology Clinics. 9:30am-11:00am. 680 N Lake Shore Drive, Suite 1400, Department of Preventive Medicine, Jin-Shei Lai, PhD, OTR/L

December 10-13, 2011
American Society of Hematology, San Diego, CA. Does Baseline Health-Related Quality of Life or Symptom Burden Predict Clinical Outcomes in Patients with Newly Diagnosed CML-CP Treated with Nilotinib or Imatinib? Jennifer L Beaumont, MS, Cindy Nowinski, MD PhD, James Burns, MS and David Cella, PhD

December 6-10, 2011
Patient-Reported Predictors of Early Treatment Discontinuation: NCIC JMA.27/E1Z03 Quality of Life Study of Postmenopausal Women with Primary Breast Cancer Randomized to Exemestane or Anastrozole.  Cancer Therapy & Research Center-American Association for Cancer Research San Antonio Breast Cancer Symposium.San Antonio, Texas.  Lynne Wagner, PhD

Dec 5, 2011
Mount Sinai School of Medicine, Cancer Prevention and Control, New York.  Patient-Reported Outcome Measurement  Information System (PROMIS).  Invited Presentation, Nan Rothrock, PhD

November 12, 2011
What It Means to Be the 2011 ECOG Young Investigator Award Recipient: Investigator-Reported Outcomes. Eastern Cooperative Oncology Group (ECOG) Young Investigator Symposium meeting. Hollywood, FL.Lynne Wagner, PhD

November 10, 2011
PROMIS overview. NIH Institute and Center Director’s meeting. Bethesda, MD.  David Cella, PhD. PROMIS overview presentation

November 9, 2011
Rehabilitation Institute of Chicago (RIC) Grand Rounds, 12:00-1:00 pm. Health Literacy: What is it? Why is it important? How should it be measured? What do patients think? Beth Hahn, MA

November 9, 2011
Use of Health Information Technology in Disease Management. Kellogg Business of Healthcare Conference, Northwestern University, 20101. David Victorson, PhD

November 4-8, 2011
Clinical outcomes and quality of life in recipients of livers donated after cardiac death. Poster to be presented at the annual meeting of the American Association for the Study of Liver Diseases. San Francisco, CA. Parikh, N. D., Skaro, A. I., Ladner, D., Lyuksemburg, V., Cahan, J. G., Daud, A., Abecassis, M. M., & Butt, Z.

November 4, 2011
Measuring culture: a mixed-methods approach to social inequality and health. Social Psychology program, Swift Hall, Rm. 414, 2029 Sheridan Rd. Evanston, IL  Elizabeth Sweet, PhD

October, 2011
Ovarian Cancer Survive and Thrive Course, Northwestern Memorial Hospital, Chicago, IL. Making sense of it: Finding meaning in the cancer experience. J. M. Salsman

October 29-November 2, 2011
American Public Health Association Annual Meeting. Washington DC.  Impact of FDA Risk Communications on Health Care Utilization and Health Behaviors: A Systematic Review. Dusetzina SB, .…., Garfield CF et al.

October 29 – November 2, 2011
NUTORC: The implementing of a transdisciplinary scientific collaboration to advance transplantation outcomes research. American Public Health Association. Washington, DC. Ross, O. A., Ladner, D., Gordon, E., Skaro, A., Butt, Z., Woods, D., Ata, B., Cella, D., Mehrotra, S., Holl, J., & Abecassis, M

October 27- 30, 2011
Pediatric Sleep Medicine Conference, Miami, FL. Actions Taken by Postpartum Mothers and Fathers during their Nocturnal Awakenings. Insana S, Garfield CF, et al.

October 27, 2011
Institute for Healthcare Studies Seminar Series, 12:00-1:00PM.
340 E. Superior Street, Rm. 421. Bilingual Health Literacy Assessment Using the “Talking Touchscreen” (“Pantalla Parlanchina”). Beth Hahn, MA

October 26-29, 2011
International Society for Quality of Life Research, Denver, CO

  • Evaluation of Dimensionality and Model Fitting for IRT Analysis. Seung Choi, PhD, David Cella, PhD
  • Validity of the  FACT Hepatobiliary (FACT-Hep) questionnaire for assessing disease-related symptoms and health-related quality of life (HRQoL) in patients with metastatic pancreatic cancer. David Cella, PhD, Zeeshan Butt, PhD
  • The outsider art of PRO development and validation: The Industry Advisory Committee of ISOQOL  David Cella, PhD
  • Emotional health and its assessment within the NIH Toolbox. In R. Gershon (Chair),  NIH Toolbox for the Assessment of Neurological and Behavioral Function. Symposium. John Salsman, PhD., Zeeshan Butt, PhD, David Cella, PhD et al.
  • NIH Toolbox Overview, Richard Gershon PhD
  • NIH Toolbox in Outcomes Research, Richard Gershon PhD
  • Platform presentation, Karon Cook, PhD, Bamer A, Amtmann D, Jensen M, Johnson K, Callahan L, Kim J, Keefe F, Revicki D, Roddey TS. 
  • Reliability and Validity of Pain, Fatigue, Depression, and Social Roles Participation PRO Measures in Populations of Individuals Aging With a Disability. Bamer A, Karon Cook, PhD,  Amtmann D. Poster Presentation

October 27, 2011
Patient Navigation post-hurricane Katrina, Northwestern University Department of Psychiatry & Behavioral Sciences-Grand Rounds. Timothy Pearman, PhD

October 26 – 30, 2011
Can parent-reported perceived cognitive function be useful for pediatric oncology clinics? 43rd Congress of the International Society of Paediatric Oncology. Auckland, New Zealand. Lai, J.-S., Zelko, F., Butt, Z.,

October 23-27, 2011
Single-incision surgery has higher cost with equivalent pain and quality of life scores compared to multiple-incision laparoscopic cholecystectomy: A prospective, randomized, blinded comparison. American College of Surgeons’ 97th Annual Clinical Congress. San Francisco, CA. Leung, D., Carbray, J., Butt, Z., Hoeger, Y., Denham, W., Barrera, E., & Ujiki, M. B.

October 20, 2011
Breast cancer disparity in Chicago: perspectives of Black women to guide cancer communication. IHS/MSS Seminar Series. 12pm Weiboldt Hall, 340 E. Superior, Northwestern University, Chicago, IL  Karen Kaiser, PhD

October 18, 2011
Predictors of breast and cervical cancer screening disparities among women with disabilities.  Inequity to Equity: Promoting the Health and Wellness of Women with Disabilities Conference.  Washington, D.C., Susan Magasi,PhD,  Jennifer Beaumont.

October 17, 2011
Fogarty AIDS International Training and Research Program presentation to the Jiangsu Association of AIDS and STD Prevention and Control and the Public Health School at Nanjing Medical University, Nanjing, China. HIV Prevention among Young Men Who Have Sex with Men. Brian Mustanski, PhD

October 5, 2011 
International Conference on Health Policy Statistics, Cleveland, OH.  Introduction to Item Response Theory and Computerized Adaptive Testing for Outcomes Measurement Instruments. Conference workshop. Laura Lee Johnson, Karon Cook, PhD, Nan Rothrock, PhD and Deborah Miller

October 4 - November 15, 2011, weekly series, each Tuesday from 12PM - 1PM Biostatistical Seminar Series - Biostatistics Collaboration Center and the Outcomes Measurement and Survey Core. Lurie Hughes Auditorium, 303 E. Superior St., Chicago, IL. 12:00-1:00pm
Joint Biostatistics / Outcomes / Bioinformatics Seminar. 9:30 AM, 750 N. Lake Shore Dr. Patient-reported predictors of early treatment discontinuation among postmenopausal women with primary breast cancer randomized to exemestane or anastrozole: Results from an Eastern Cooperative Oncology Group trial. Lynne Wagner, PhD

October 4, 2011
International Association for Computerized Adaptive Testing (IACAT), Pacific Grove, CA.

  • Measuring Complex Health Outcomes: A Multidimensional Hierarchical Computerized Adaptive Testing Approach. Keynote speech. Seung Choi, PhD
  • How We Assess 12 Areas of Emotional Health in under 15 Minutes using Computer Adaptive Testing (CAT).  Jin-Shei Lai, PhD, OTR/L
  • Introduction to the NIH Toolbox for the Assessment of Neurological and Behavioral Function. Richard Gershon, Ph.D
  • The Development of a CAT to Assess Picture Vocabulary 3:3 Skills in English and Spanish. Richard Gershon, Ph.D

October 2, 2011
Psychological impact of breast cancer, Lynn Sage Breast Cancer Town Hall Meeting. Lurie Comprehensive Cancer Center, Northwestern University Timothy Pearman, PhD

October 1, 2011
Caregivers and Ovarian Cancer.  Ovarian Cancer Survive and Thrive Course by the Northwestern University Oncofertility Consortium,– panel discussion with Timothy Pearman, PhD

September 29, 2011
Rheumatology Grand Rounds lecture, Northwestern Memorial Faculty Foundation.  PROMIS and the NIH Toolbox: New tools for outcomes measurement. Cindy Nowinski, MD, PhD

September 18, 2011
Academy of Oncology Nurse Navigators (AONN)
 Second Annual Navigation & Survivorship Conference, San Antonio, TX. Psychosocial Distress Management (Invited Presentation) Nan Rothrock, PhD.

September 12-15, 2011
AIDS Impact
, 10th International Conference. Santa Fe, NM

August, 2011
Translational research on the role of the Internet in the sexual health of LGBT youth.  Boston University Department of Psychology Colloquium Series. Boston, MA. Brian Mustanski, PhD

August, 2011 
Transplantation Quality of Life. Invited paper presented at the Northwestern University Affiliated Transplant Centers’ Dimensions of Transplantation: Updates in Solid Organ Transplantation. Chicago, IL. Zeeshan Butt, PhD

August 19, 2011
Joint Biostatistics/Outcomes/Bioinformatics Seminar: 9:30am-11:00am, 680 N Lake Shore Drive, Suite 1400, Chicago, Department of Preventive Medicine, Stamler Conference Room. Translatability, Translation and Cultural Adaptation of PROs: addressing the language barrier during and after instrument development. Helena Correia. 

August 14-17, 2011
International Conference on Pharmacoepidemiology & Therapeutic Risk Management (ICPE). Chicago, IL. U.S. Trends in the Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder, 2000-2010. Garfield CF, et al

August 10-13, 2011
Sex Differences in Developmental Trajectories of Sexual Attractions Among LGBT Youth. International Academy of Sex Research, Los Angeles, CA.  Brian Mustanski, PhD, Michelle Birkett, PhD, Allen Ashbeck, BA.

August 5, 2011
Navigating the funding maze: NIH opportunities. In K. Sinclair & L. M. Garcini (Chairs). Navigating the funding maze: Helping graduate students, post-docs, and early career professionals find and utilize what’s available. Workshop/discussion session presented at the American Psychological Association, Washington, DC. Zeeshan Butt, PhD

July 14, 2011
Gynecologic Oncology Group (GOG) Summer Symposium, Philadelphia, PA. New Initiatives for the Gynecologic Oncology Group: “CER & QOL: The importance of Patient–Reported Outcomes” David Cella, PhD

July 17, 2011
National Association for Ambulatory Behavioral Health 
Conference, Doubletree Hotel, Chicago, IL.  Keynote address: Why Mindfulness Matters: An Overview of Mindfulness Clinical Research and Mindfulness A,B,C’s: Attention, Breath, and Clinical Application, Vered Hankin, PhDand Mindfulness A,B,C’s: Attention, Breath, and Clinical Application, Vered Hankin, PhD

June 20-21, 2011
Center for Rehabilitation Outcomes Research Training and Education Summer Institute on Measuring Rehabilitation Outcomes.  Two-day Institute led by Richard Gershon, Ph.D. and Nan Rothrock, Ph.D.  Details and online registration

June 16, 2011
Academy of Behavioral Medicine Research 2011 Annual Meeting, Deer Valley, UT. PROMIS presentation, David Cella, PhD

June 15, 2011
Accessibility and Usability of the NIH Toolbox for Individuals with Traumatic Brain Injury.  Federal Interagency Conference on Traumatic Brain Injury.  Washington, D.C., Susan Magasi,PhD and Mark Harniss, PhD.

June 14, 2011
Participation and Environmental Factors Measures for TBI Rehabilitation.  Federal Interagency Conference on Traumatic Brain Injury. Washington, D.C. AJ Heinemann,PhD, Susan Magasi,PhD, and N. Carlozzi 

June 8, 2011
Behavior Genetics Association symposium, Newport, R.I. The Gene, Environment, and neighborhood initiative (GENI) to understand a cluster of health outcomes in African American youth. Brian Mustanski, PhD, Danielle Dick, Shawn Latendresse, and Aashir Nasim.

June 3 - 7, 2011
American Society of Clinical Oncology, Chicago, IL. Improving Drug Safety: From Toxicity Assessment to Post-marketing Surveillance", Education Session-David Cella, PhD

Symptom burden and change  among adolescent/young adult (AYA) cancer patients with breast, lung, colorectal, or prostate cancer. Poster session. Chang, V.T.S., Zhao, F., Wagner, L.I., Sanford, S.D., Salsman, J., & Fisch, M.

June 2, 2011
Feinberg School of Medicine Department of Urology Grand Rounds “Routine Assessment of Symptoms, Side Effects and QOL in Uro-Oncology: Implications for Patient Phenotyping, Treatment Decision Making and Symptom Management Support”. David Victorson, PhD

June 1, 2011
Health Disparities and Health Care Delivery Systems: A Cross National Examination of the Relationship between Public Policies and People with Disabilities’ Experiences. Canadian Disability Studies Society. Fredericton, Canada.. Magasi, S.

May, 2011
Faith, meaning, and posttraumatic growth among cancer survivors: Problems, pathways, and prospects. Department of Psychology Colloquium, University of Notre Dame, Notre Dame, IN. John Salsman

May 23, 2011
Institute of Policy Research Policy Briefing: Smoking in Pregnancy and Child Behavior Problems.
Effects of Early Environments on Behavior, Achievement, and Health, Laurie Wakschlag, PhD 12:00 PM - 1:30 PM, Northwestern University, Wieboldt Hall, 340 E. Superior,4th fl. Chicago.  Registration required, register here.  More>> 

May 25, 2011
Feinberg School of Medicine, Department of Psychiatry and Behavioral Sciences Grand Rounds, 11:30-1:00PM, Laurie Wakschlag, PhD, Measurement Matters: Novel Paradigms and New Directions in Pathways to Developmental Psychopathology

May 23, 2011
Institute of Policy Research Policy Briefing: Smoking in Pregnancy and Child Behavior Problems.
Effects of Early Environments on Behavior, Achievement, and Health, Laurie Wakschlag, PhD 12:00 PM - 1:30 PM, Northwestern University, Wieboldt Hall, 340 E. Superior,4th fl. Chicago.  Registration required, register here.  More>> 

May 25, 2011
Feinberg School of Medicine, Department of Psychiatry and Behavioral Sciences Grand Rounds, 11:30-1:00PM, Laurie Wakschlag, PhD, Measurement Matters: Novel Paradigms and New Directions in Pathways to Developmental Psychopathology

May 20, 2011
Joint Biostatistics/Outcomes/  Bioinformatics Seminar. 9:30am-11:00. J750 N Lake Shore Drive, Rm. 11-300. Saturation Infatuation: Determining How Many Interviews are Enough in Qualitative Health Research. David Victorson, PhD

May 20, 2011
Assessment Center workshop- full-day workshop providing a basic understanding of Item Response Theory (IRT) and Computerized Adaptive Testing (CAT) and Assessment Center, a free, online, research management tool.

May 19, 2011
Institute for Healthcare Studies Seminar Series/ MSS Speaker Series on Applied Social Sciences and Health. A Randomized Trial of Weekly Symptom Monitoring in Advanced Lung Cancer. 12:00PM - 1:00PM,  Room 421, Wieboldt Hall, 340 E. Superior Street. Susan Yount, PhD

May 10, 2011
Digestive Disease Week, McCormick Place, Chicago, IL, Characteristics Associated With Health-related Quality of Life of Patients With Neuroendocrine Tumor  Jennifer Beaumont, MS

May 4 - 7, 2011
Society of General Internal Medicine Annual Meeting Phoenix, AZ.  U.S. Trends in the Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder, 2000-2010. Garfield CF, et al

April 30 - May 4
American Transplant Congress. Philadelphia Convention Center, Philadelphia, PA.  Prevalence and predictors of sub-optimal liver recipient quality of life. Butt, Z., Parikh, N. D., Lyuksemburg, V., Daud, A., Lee, J., & Ladner, D. Quality of life and health status in young adults two decades after pediatric liver transplantation.  Mohammad, S., Hormaza, L., Neighbors, K., Boone, P., Azzam, R., Butt, Z., & Alonso, E. M. Defining and tracking sub-optimal quality of life in a longitudinal cohort of kidney recipients. Butt, Z., Gil, S., & Caicedo, J. C.

April 30 - May 3, 2011
Society for Pediatric Research meeting, Denver, CO, Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder in the United States, 2000-2010.  Garfield CF, et al. 
Pediatric Academic Societies Annual Meeting.  Denver, CO U.S. Trends in the Diagnosis and Treatment of Attention Deficit Hyperactivity Disorder, 2000-2010. Garfield CF, et al.  

April 27-30
Society of Behavioral Medicine
, Washington, D.C.  No worries? Adaptation and health behaviors among young adult cancer survivors. John Salsman, PhD, Sofia Garcia, PhDDavid Victorson, PhD, Bruce Brockstein, MD, & David Cella, PhD
Pre-surgical perceived stress predicts febrile status following oncologic surgery. Sally Jensen, PhD

April 11-12, 2011
American Academy of Neurology Annual Meeting, Hawaii Convention Center,Honolulu, HI.  Best Care Expo: PROMIS and NeuroQOL, David Cella, PhD,Richard Gershon, PhD, Nan Rothrock, PhD.

April 11-14, 2011
International Science of Team Science Conference, Chicago, IL. NUTORC: The implementing of a transdisciplinary scientific collaboration to advance transplantation outcomes research. Ladner, D. P., Gordon, E. J., Ross, O. A., Skaro, A. I., Woods, D., Butt, Z., Mehrotra, S., Hazen, G., Ata, B., Alonso, E., Cella, D., Holl, J., & Abecassis, A.  

April 16, 2011
Building your Clinical Toolbox for Outcomes: Start Using the Tools.  American Occupational Therapy Association Annual Conference.  Philadelphia, PA,. Heinemann AJ, Baum C, Hammel J, Magasi S.

April 1, 2011
Psychiatry Grand Rounds, Medical University of South Carolina, Charleston, SC (2011, April). Posttraumatic growth among cancer survivors: Pathways and prospects. Salsman, J.M.

April 7, 2011
Night at the Museum – An Evening for Young Adults Touched by Cancer, Museum of Science and Industry, Chicago, IL. Program of Lurie Cancer Center and LIVESTRONG. What makes a young adult survivor unique? Invited panelist. Salsman, J.M.

April 4
PROMIS and Assessment Center, Osteogenesis Imperfecta Foundation, Gaithersburg, MD, Nan Rothrock, PhD

March 30-April 2, 2011

Society of American Gastrointestinal and Endoscopic Surgeons (SAGES), San Antonio, TX. Single incision laparoscopic cholecystectomy results in similar short-term post-operative pain and quality of life scores when compared to multi-incision Leung, D., Denham, W., Salabat, M., Butt, Z., Barrera, E., & Ujiki, M. B.

March 5-8, 2011
American Society of Preventive Oncology, Annual Meeting, Las Vegas, NV.   Breast Cancer in Six U.S. Metropolitan Areas: The Elevated Risk of Late-Stage Diagnosis among Young Minority Women and the Poor.  Karen Kaiser, PhD

Friday, February 18, 2011
Joint Biostatistics / Outcomes / Bioinformatics (BOB) Seminar. 9:30am-11:00am, 680 N Lake Shore Drive, Suite 1400
Patient Reported Outcomes in Clinical Trials, Jennifer Beaumont, MS.  Patient self-reported outcomes are common endpoints in clinical trials, particularly clinical trials for chronic diseases such as cancer.

February 24, 2011
American Society for Experimental NeuroTherapeutics (ASENT) Annual Meeting, Bethesda, MD.  Is there Promise in the NIH PROMIS Initiative? David Cella, PhD

February 17-19, 2011
American Psychosocial Oncology Society Annual Meeting, Anaheim, CA, Patient-Reported Outcomes Measurement Information System (PROMIS) in cancer. Workshop: Nan Rothrock, PhD, Sofia Garcia, PhD et al.

American Psychosocial Oncology Society Annual Meeting, Anaheim, CA. Introduction to PROMIS and the NCI Cancer Supplement. Sofia F. Garcia, PhD

American Psychosocial Oncology Society Annual Meeting, Anaheim, CA. It’s all good? Psychosocial adaptation among young adult cancer survivors. Paper presented. Salsman, J., Victorson, D., Garcia, S., Brockstein, B., & Cella, D.

February 10, 2011
Relationships, risks, and resiliency among LGBT youth. Lecture sponsored by the University of California at Los Angeles Department of Psychology, Interdisciplinary Relationship Sciences Program, and the Williams Institute. Los Angeles, CA., Brian Mustanski, PhD

February 7-9, 2011
Summit for Clinical Trials Operations Executives, Miami, FL. PROMIS and Assessment Center.  Nan Rothrock, PhD

January 26, 2011
Feinberg School of Medicine, Department of Psychiatry and Behavioral Sciences Grand Rounds, 11:30-1:00PM  David Cella, PhD

January 18, 2011
Assessment Center workshop- full-day workshop providing a basic understanding of Item Response Theory (IRT) and Computerized Adaptive Testing (CAT) and Assessment Center, a free, online, research management tool.

January 20, 2011
Rush University College of Health Sciences, Chicago, Illinois, Faculty Research Development Committee Research Lunch and Learn session. Current Trends in Patient-Centered Outcomes Research, David Cella, PhD

January 6, 2011
Feinberg Cardiovascular Research Institute Seminar Series, Lurie Medical Research Center of Northwestern University.  PROMIS: Patient Reported Outcome Measurement Information System in Relation to Cardiovascular Research, David Cella, PhD More>>

List of Presentations delivered in 2010>>>

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