Northwestern University Feinberg School of Medicine

Department of Medical Social Sciences

Outcomes Measurement and Survey Core

Outcomes Measurement and Survey Core (OMSC), housed within the Department of Medical Social Sciences, serves the needs of the cancer researchers of the Robert H. Lurie Comprehensive Cancer Center.  The mission of this core facility is to provide consultation and support for research that involves collecting, analyzing or interpreting self-report data in culturally diverse populations.  OMSC provides expertise on the best ways to measure outcomes derived by self-report, serves as a central resource for state-of-the-science instruments and measurement methods, and provides in-house research support services for translation, collection and analysis of outcomes and survey data. The Department of Medical Social Sciences also provides similar services to any member of the Northwestern community. (Services may require funding and/or advanced scheduling.)

NQF monograph: "Patient-Reported Outcomes in Performance Measurement" by D. Cella, E. Hahn, S. Jensen, Z. Butt, C. Nowinski, N. Rothrock, & K.Lohr   Download free from RTI Press 

Zeeshan Butt, PhD appointed to PCORI Advisory Panel on Assessment of Prevention, Diagnosis, and Treatment Options

Services Offered

Research Design Consultation Services

Programming & Analysis Services

Research Operations Services


Title: Understanding Health Literacy and Self-reported Health Outcomes in a Spanish-speaking Community of Southwest Chicago
PIs: Elio DeArrudah, Universidad Popular and Elizabeth Hahn

Title:Improving Longitudinal Quality of Life Assessment in Hepatocellular Carcinoma
PI:Zeeshan Butt, PhD,  Associate Professor
Sponsor: National Cancer Institute

Title: A pilot investigation to examine the effect of a multi-media, computer based tool (Talking Touchscreen) on enrollment in adult oncology-specific clinical trials at an academic medical center   Co-PIs: Blasé Polite, MD (Assistant Professor, University of Chicago Medicine) and Elizabeth Hahn, MA (Associate Professor, Northwestern University Feinberg School of Medicine)  Sponsor: Merck & Co., Inc. and Banyu Pharmaceutical Co., Ltd. Grant Period: 2014-2016


October 23, 2018

Elizabeth Hahn presented research findings on health literacy and self-reported health outcomes from three studies at the Health Literacy Annual Research Conference, October 21-23, 2018.

 “Unbiased measurement instruments are needed to reliably estimate health literacy in diverse populations” (English- and Spanish-speaking adults with Type 2 diabetes)

“Pensando en mi salud (Thinking about my health): Health literacy and patient-reported outcomes in a community-based participatory research project” (Spanish-speaking adult community members)

“The Impact of Health Literacy and Social Support on Self-Efficacy for Self-Care in People with a Left Ventricular Assist Device (LVAD)” (English-speaking adult patients ≥3 months post-LVAD)

September 27-28, 2017

Elizabeth Hahn presenting on these topics at HealthMeasures Users' Conference

Computer-based Administration of Health Literacy and Functional Literacy Measures in Physical Rehabilitation Populations
Understanding the Need for Assistance when Completing Measures of Patient Reported Outcomes in Huntington Disease.

June 23, 2017

Elizabeth Hahn presented at Northwestern's 8th Annual Clinical Research Symposium on "Patient-Reported Outcomes: Measuring What Matters to Diverse Populations" June 23rd. 

November 3, 2015

Elizabeth Hahn presented at Boston University Medical-Health Literacy Research Conference: "Examining potential for increasing the role of health literacy in PCORI funded programs" Nov.3, 10:00am

October 23 -24, 2015

Elizabeth Hahn presented on these topics at ISOQOL:

“Computer-based Measurement of Health Literacy, Functional Literacy, Cognitive Abilities and Patient-Reported Outcomes Among English-speaking Adults with Functional Limitations Due to Spinal Cord Injury, Stroke or Traumatic Brain Injury” October 23, 9AM  

“Quality of Life following Stroke, Traumatic Brain Injury and Spinal Cord Injury” Symposium 5. October 24, 1:45PM 

March 6-7, 2015 
Elizabeth Hahn was an invited speaker (“Quality of Life Assessment for Low Literacy Patients: Use of Multimedia Programs for Self-administration“) at “II Simpósio Internacional de Qualidade de Vida Relacionada à Saúde do HCB” in Barretos, Brazil, March 6-7, 2015.

October 6, 2014
Elizabeth Hahn presented “Patient-reported outcomes in health care performance measurement” at AdvaMed 2014: The MedTech Conference, Chicago, Illinois

October 28-29, 2013
Elizabeth Hahn, presented a poster on Health Literacy Measurement and Outcomes Among Underserved English-and Spanish-speaking People with Type 2 Diabetes.  5th Annual Health Literacy Research Conference  National Academy of Sciences, 2101 Constitution Ave, NW, Washington, D.C.

October 9 – 11, 2013
Elizabeth Hahn presented a poster at the 10th International Conference on Health Policy Statistics, Palmer House Hilton Hotel, Chicago, Illinois.  Conference is jointly sponsored by the American Statistical Association and its Health Policy Statistics Section.

OMSC Science: selected examples

Key Publications and References: relevant to OMSC

  • Hahn EA, Downing NR, Stout JC, et al. Understanding the need for assistance with survey completion in people with Huntington disease. Qual. Life Res. 2017. Link to article
  • Hahn EA, Segawa E, Kaiser K, Cella D, Smith BD. Health-Related Quality of Life among Women with Ductal Carcinoma in Situ or Early Invasive Breast Cancer: Validation of the Fact-B (Version 4). Expert Review of Quality of Life in Cancer Care. 2016 (Epub ahead of print) Link to article
  • Cella, D., Hahn, E. Jensen, S., Butt,Z. Nowinski, C. Rothrock, N. & K.Lohr. "Patient-Reported Outcomes in Performance Measurement" by  Download free from RTI Press
  • Hahn, E.A., Kallen, M.A., Jacobs, E.A., et al.  (2014). English-Spanish Equivalence of the Health Literacy Assessment Using Talking Touchscreen Technology (Health Litt). Journal of Health Communication, 19(Supplement 2), 285-301. Abstract in PubMed
  • Cella, D., Hahn, E.A., Jensen, S.E et al. (2012). Methodological Issues In The Selection, Administration And Use Of Patient-Reported Outcomes.... Commissioned Paper #1. Washington, DC: National Quality Forum. Link to manuscript
  • Yost, K. J., Webster, K., et al. (2010). Acceptability of the talking touchscreen for health literacy assessment  Abstract in PubMed   

More publications and references>>

Elizabeth Hahn

Elizabeth A. Hahn
Outcomes Measurement and Survey Core-Director
Associate Professor, Department of Medical Social Sciences
T: 312-503-9804
Email Elizabeth A. Hahn

Computer-based Tools

Assessment CenterSM a computer-based data collection tool
Visit Assessment CenterSM

Talking Touchscreen
Hahn, E. A., et al. (2010). Literacy-fair measurement of health-related quality of life..... Medical Care,48, 6, 75-82. Abstract in PubMed

Bilingual Talking Touchscreen Expanded for New Uses. Learn more about how this innovative tool is helping patients

Outcomes Measurement and Survey Core Facility of the Robert H. Lurie Comprehensive Cancer Center